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ResourcesLyme Disease Resources: 60+ Trusted Websites
A directory of 78 reputable Lyme and tickborne disease websites, from CDC and university labs to patient advocacy groups, each with a short note on what you will find there.
Quick answer
The most reliable Lyme disease information comes from government health agencies (such as CDC, NIH and your state health department), medical societies and university research centers. Patient advocacy groups add support and lived experience, and some disagree with official guidance. Below are 78 active websites we checked in October 2026, grouped by type.
Listing is not an endorsement. Beat Lyme has no financial relationship with these organizations. Suggest a site: /contact/.
How to judge a Lyme website
Lyme disease is a topic where you will find strong opinions, so it helps to check a few things before you trust a page:
- Who runs it? Look for an About page. A government agency, university, medical society or registered nonprofit should say who it is and how to contact it.
- Where does the information come from? Good pages cite studies or guidelines you can look up, and explain how content is reviewed.
- Is it selling something? Be cautious if the same site sells tests, supplements or treatments, or promises a cure that sounds too good to be true.
- Is it dated? Check when the page was written or last updated. Guidance on testing and treatment changes over time.
- Does it fit a perspective? On contested topics such as chronic Lyme, compare the CDC/IDSA view with the patient-advocate/ILADS view. Our guide to IDSA vs ILADS explains the differences.
The National Library of Medicine (MedlinePlus) suggests asking who operates and pays for a health website, whether ads are clearly labeled, whether sources and dates are shown, and how content is reviewed. It warns against sites that push products or promise cures.
US government health agencies 15
Federal agencies publish the official US guidance on Lyme disease and fund most of the research. Start here if you want the standard medical view.
- GovernmentCDC: Lyme Disease
The main federal hub on Lyme disease, with plain-language pages on how it spreads, symptoms, testing, treatment and prevention.
cdc.gov - GovernmentCDC: Ticks
CDC home page for ticks and the illnesses they spread, including where ticks live, how to avoid bites and what to do after one.
cdc.gov - GovernmentCDC: Lyme Disease Surveillance and Data
Explains how Lyme cases are counted in the US and links to national case maps, charts and data tables.
cdc.gov - GovernmentCDC: Clinical Care of Lyme Disease
Guidance written for clinicians on treating Lyme disease and managing symptoms that last after treatment; useful to bring to appointments.
cdc.gov - GovernmentCDC: Tick Bite Data Tracker
An interactive dashboard showing emergency department visits for tick bites by week, region, age and sex.
cdc.gov - GovernmentCDC: Alpha-gal Syndrome
CDC information on alpha-gal syndrome, a tick-linked allergy to red meat and other mammal products.
cdc.gov - GovernmentCDC/NIOSH: Tickborne Diseases in Workers
Prevention steps for people who work outdoors and for their employers, plus signs that mean it is time to see a doctor.
cdc.gov - GovernmentCDC Yellow Book: Mosquitoes, Ticks and Other Arthropods
Travel-health guidance on avoiding tick and insect bites abroad, including repellents and protective clothing.
cdc.gov - GovernmentNIAID: Lyme Disease
The NIH institute that funds most federal Lyme research describes the disease and its research priorities on diagnosis, treatment and prevention.
niaid.nih.gov - GovernmentMedlinePlus: Lyme Disease
The National Library of Medicine’s patient page, gathering trusted links on Lyme symptoms, tests, treatment and current research.
medlineplus.gov - GovernmentMedlinePlus: Tick Bites
A plain-language overview of tick bites, how to remove a tick and when to call a health care provider.
medlineplus.gov - GovernmentFDA: New Indications for Lyme Disease Tests (2019)
An FDA announcement explaining its 2019 clearance of a blood-testing approach that uses two antibody tests instead of a Western blot as the second step.
fda.gov - GovernmentEPA: Find the Repellent That Is Right for You
A search tool for EPA-registered skin repellents that lets you filter by ticks, active ingredient and hours of protection.
epa.gov - GovernmentClinicalTrials.gov: Lyme Disease Studies
The official US registry of clinical studies; this search lists Lyme disease trials that are recruiting, active or completed.
clinicaltrials.gov - GovernmentDoD Tick-Borne Disease Research Program
A congressionally directed program that funds research on preventing, diagnosing and treating Lyme and other tickborne diseases.
cdmrp.health.mil
State health departments 8
Your state health department tracks local cases and often has its own tick and Lyme pages. We list high-incidence states below. For every state, see Lyme disease by state.
- GovernmentPennsylvania Department of Health: Tickborne Diseases
Pennsylvania’s hub for tick prevention, testing information, state data and educational materials.
pa.gov - GovernmentNew York State Department of Health: Ticks and Lyme Disease
New York’s page on Lyme and other tickborne illnesses, with prevention and repellent guidance.
health.ny.gov - GovernmentNew Jersey Department of Health: Lyme Disease
New Jersey’s overview of Lyme symptoms, treatment, prevention and related state resources.
nj.gov - GovernmentConnecticut Department of Public Health: Lyme Disease
Connecticut’s Lyme page, covering prevention, clinician resources and how cases are reported in the state.
portal.ct.gov - GovernmentMassachusetts Department of Public Health: Lyme Disease
A Massachusetts fact sheet on causes, symptoms, diagnosis, treatment and preventing tick bites.
mass.gov - GovernmentMaine CDC: Lyme Disease
Maine’s page on deer ticks and Lyme, with yearly surveillance reports and prevention tips.
maine.gov - GovernmentVermont Department of Health: Lyme Disease
Vermont’s guide to prevention, symptoms, diagnosis and treatment, plus case trends in the state.
healthvermont.gov - GovernmentWisconsin Department of Health Services: Lyme Disease
Wisconsin’s overview of its most common tickborne illness and how to prevent it.
dhs.wisconsin.gov
International health agencies and groups 10
Lyme disease is also common in Canada, the UK and much of Europe. Guidance in these countries is similar in most ways but not identical to US guidance.
- GovernmentECDC: Borreliosis (Lyme disease)
The European Centre for Disease Prevention and Control’s overview of Lyme borreliosis in Europe, with prevention and surveillance information.
ecdc.europa.eu - GovernmentPublic Health Agency of Canada: Lyme Disease
Canada’s federal guidance on symptoms, diagnosis, treatment and where in Canada the risk is higher.
canada.ca - GovernmentNHS: Lyme Disease
The UK National Health Service’s patient guide to symptoms, removing ticks, diagnosis and treatment.
nhs.uk - GovernmentUKHSA: Lyme Disease Resources and Guidance
The UK Health Security Agency’s collection of Lyme guidance on diagnosis, lab testing, epidemiology and prevention.
gov.uk - GovernmentUKHSA: Tick Awareness and Toolkit
Free UK posters and materials for raising awareness of ticks and tickborne disease in communities and workplaces.
gov.uk - GovernmentNICE Guideline NG95: Lyme Disease
The guideline used in England and Wales for diagnosing and managing Lyme disease, including a version written for the public.
nice.org.uk - GovernmentFit for Travel (Public Health Scotland): Lyme Disease
Travel advice on Lyme disease risk abroad and how to avoid and remove ticks.
fitfortravel.nhs.uk - AdvocacyCanadian Lyme Disease Foundation (CanLyme)
A Canadian charity focused on patient education, advocacy and research support; it argues Lyme is often missed or misdiagnosed.
canlyme.com - AdvocacyLyme Disease UK
A volunteer-run UK charity offering patient support, tick awareness campaigns and information.
lymediseaseuk.com - AdvocacyLyme Disease Action (UK)
A UK charity that publishes information on Lyme and other tickborne diseases for patients and health professionals.
lymediseaseaction.org.uk
Medical societies and guidelines 6
Doctors rely on clinical guidelines. In the US, the 2020 IDSA/AAN/ACR guideline is the mainstream U.S. guideline, and CDC says its treatment regimens are consistent with it; the 2014 ILADS guideline is an alternative used by some clinicians. Read our plain-language IDSA vs ILADS comparison.
- MainstreamIDSA/AAN/ACR 2020 Lyme Disease Guideline
The full text of the joint 2020 guideline from infectious disease, neurology and rheumatology societies, with graded recommendations; written for clinicians.
idsociety.org - MainstreamAmerican Academy of Neurology: Lyme Disease Guideline
The AAN’s page for the same 2020 guideline, with a clinician summary and a note that it was reaffirmed in 2023.
aan.com - MainstreamAmerican College of Rheumatology: Lyme Disease
A patient page from rheumatologists on Lyme symptoms, Lyme arthritis, testing, treatment and post-treatment symptoms.
rheumatology.org - AdvocacyILADS (International Lyme and Associated Diseases Society)
A medical society whose 2014 guideline takes a different view from IDSA on chronic Lyme and treatment length; the site has its guidelines and a provider search.
ilads.org - MainstreamFamilyDoctor.org: Lyme Disease
The American Academy of Family Physicians’ patient overview of symptoms, diagnosis, treatment and prevention.
familydoctor.org - MainstreamNemours KidsHealth: Lyme Disease
A parent-friendly explanation of Lyme disease in children from a pediatric health system.
kidshealth.org
Academic research centers and university tick labs 9
University centers run studies on persistent symptoms, better tests and tick ecology. Many list clinical trials you may be able to join. See also our Lyme disease research overview.
- ResearchJohns Hopkins Lyme Disease Research Center
A research center and clinic studying persistent symptoms after Lyme, with patient education and study news.
hopkinslyme.org - ResearchColumbia University Lyme and Tick-Borne Diseases Research Center
Research news, clinical trial listings and education on Lyme and other tickborne diseases, including neurological symptoms.
columbia-lyme.org - ResearchTufts Lyme Disease Initiative
A Tufts University group of scientists and clinicians working on diagnostics, chronic Lyme research and prevention.
tuftslymedisease.org - ResearchYale School of Public Health: Vector Biology and Ecology
An overview of Yale research on tickborne and other vector-borne diseases, with links to faculty working on Lyme and ticks.
ysph.yale.edu - ResearchTickEncounter Resource Center (University of Rhode Island)
A university tick-education site with a photo field guide to tick species and life stages and practical prevention tips.
web.uri.edu - ResearchPenn State Extension: Ticks and Tickborne Disease
A Penn State guide to the tick species found in Pennsylvania, the diseases they carry and how to prevent bites.
extension.psu.edu - ResearchMidwest Center of Excellence for Vector-Borne Disease
A CDC-funded center at the University of Wisconsin–Madison researching ticks and mosquitoes in the Midwest.
mcevbd.wisc.edu - ResearchNortheast Regional Center for Excellence in Vector-Borne Diseases
A CDC-funded, Cornell-led center that trains professionals and shares research on ticks and mosquitoes in the Northeast.
neregionalvectorcenter.com - ResearchCary Institute: The Tick Project
Results from a completed 2016–2021 study testing whether neighborhood tick control lowers tickborne illness in people.
caryinstitute.org
Patient and advocacy organizations 12
These nonprofits offer community, education and research funding. Several take a patient-advocacy view that differs from CDC/IDSA on chronic Lyme and long-term treatment. For local groups, see Lyme disease support groups.
- AdvocacyLymeDisease.org
A long-running patient advocacy nonprofit with education, news, advocacy updates and links to online support.
lymedisease.org - AdvocacyLymeDisease.org: “I found a tick. Now what?”
A 2026 article comparing how the IDSA and ILADS guidelines approach a tick bite, written from a patient-advocacy point of view.
lymedisease.org - AdvocacyMyLymeData
LymeDisease.org’s patient registry, where people with Lyme can share their health data for research.
mylymedata.org - AdvocacyGlobal Lyme Alliance
A nonprofit that funds research, runs awareness and physician-education programs and lists patient resources.
globallymealliance.org - AdvocacyBay Area Lyme Foundation
A nonprofit that funds Lyme research, shares prevention resources and runs a free tick-testing citizen-science program.
bayarealyme.org - ResearchLyme Disease Biobank
A Bay Area Lyme Foundation program that collects samples from volunteers and shares them with researchers developing better tests.
bayarealyme.org - AdvocacyProject Lyme
A nonprofit with patient education, webinars, a provider search and support resources.
projectlyme.org - AdvocacyLymeLight Foundation
A California nonprofit that gives treatment grants to eligible children and young adults with Lyme disease.
lymelightfoundation.org - AdvocacyNational Capital Lyme Disease Association
A Washington, DC–area nonprofit offering local support groups, education and tickborne disease advocacy.
natcaplyme.org - AdvocacyLyme Connection
An all-volunteer Connecticut group focused on tick-bite prevention and support for local patients.
lymeconnection.org - MainstreamAmerican Lyme Disease Foundation
A nonprofit sharing education on Lyme and other tickborne illnesses that generally follows mainstream medical guidance.
aldf.com - AdvocacyAlpha-gal Information
A patient-led project summarizing research and practical tips on alpha-gal syndrome, the tick-linked meat allergy.
alphagalinformation.org
Note: The Lyme Disease Association, a long-running national group, announced on its website that it closed in December 2024, so we no longer list it.
Tick identification and testing 5
Knowing what kind of tick bit you can help you and your provider decide what to watch for. Testing a tick for germs is different: CDC generally does not recommend it for treatment decisions, because a positive tick does not mean you were infected and a negative result does not rule it out. Read our guide to tick testing before you pay for a test, and see what to do after a tick bite.
- GovernmentCDC: What to Do After a Tick Bite
CDC steps after a bite, including why it generally does not recommend testing ticks to decide on treatment.
cdc.gov - ResearchTickSpotters (University of Rhode Island)
A free service where you upload a photo of a tick and get an expert identification, usually within a day.
web.uri.edu - ResearchPennsylvania Tick Research Lab (East Stroudsburg University)
A university-affiliated lab that tests submitted ticks for several germs; check its site for current pricing and turnaround.
ticklab.org - GovernmentCAES Tick Testing Laboratory (Connecticut)
The Connecticut Agricultural Experiment Station’s program for identifying and testing ticks submitted by state residents.
portal.ct.gov - ResearchUniversity of Maine Cooperative Extension Tick Lab
Tick identification and testing for submitted ticks, plus yearly reports on tick submissions in Maine.
extension.umaine.edu
Pets and animals 5
Dogs and horses can get Lyme disease too. These veterinary resources follow mainstream veterinary guidance. Always check with your own veterinarian. Start with our guide to Lyme disease in dogs.
- MainstreamCAPC: Lyme Disease Guideline (Dogs)
The Companion Animal Parasite Council’s veterinary guideline on Lyme disease in dogs, including testing and prevention.
capcvet.org - MainstreamPets & Parasites (CAPC)
CAPC’s site for pet owners, with parasite prevalence maps and plain-language articles on ticks and tick-borne disease.
petsandparasites.org - MainstreamMerck Veterinary Manual: Lyme Borreliosis in Animals
A veterinary reference on Lyme in dogs, horses and cats, covering signs, diagnosis, treatment and prevention.
merckvetmanual.com - ResearchCornell University: Lyme Disease Multiplex Testing for Dogs
Cornell’s diagnostic lab explains its canine Lyme blood test and how vets use it to tell infection from vaccination.
vet.cornell.edu - MainstreamEquine Disease Communication Center: Lyme Disease
A horse-health fact sheet on Lyme signs, testing, treatment and tick control.
equinediseasecc.org
Books and media
We keep a separate, balanced list of memoirs, science books and investigative reporting on Lyme disease, with notes on each book’s perspective.
Support and mental health 8
Living with Lyme, especially when symptoms linger, can affect mood, work and money. These services can help. See also Lyme disease and mental health and financial help.
If you are thinking about suicide or are in crisis, call or text 988 (Suicide & Crisis Lifeline) or chat at 988lifeline.org. If you are in immediate danger, call 911.
- Mainstream988 Suicide & Crisis Lifeline
Free, confidential support 24/7 by calling or texting 988 or chatting online.
988lifeline.org - MainstreamCrisis Text Line
Free, 24/7 text support with a trained volunteer when you text HOME to 741741.
crisistextline.org - MainstreamNAMI (National Alliance on Mental Illness)
A national grassroots organization offering education, support groups and advocacy for people affected by mental health conditions.
nami.org - MainstreamNAMI HelpLine
A free peer-support line for information and referrals on weekdays; it is not a crisis line.
nami.org - GovernmentNIMH: Chronic Illness and Mental Health
A National Institute of Mental Health guide to how long-term illness and depression affect each other and how to find help.
nimh.nih.gov - GovernmentFindTreatment.gov
A confidential federal locator for state-licensed mental health and substance use treatment.
findtreatment.gov - GovernmentJob Accommodation Network (JAN)
A free, Department of Labor–funded service with guidance on workplace accommodations for health conditions.
askjan.org - GovernmentSocial Security: Disability Benefits
The official starting point for learning about Social Security disability benefits and how to apply.
ssa.gov
We are collecting real experiences about the websites and organizations that helped you most from people who have lived it, shared with their permission. As stories come in, they will appear here, clearly marked as personal experience rather than medical advice.
Frequently asked questions
What is the most reliable website for Lyme disease information?
For the official US medical view, start with CDC’s Lyme disease pages, NIH’s MedlinePlus and NIAID, and your state health department. University research centers such as Johns Hopkins and Columbia are also strong sources. Patient advocacy groups can add support and lived experience.
Why do some Lyme websites disagree with each other?
Doctors and patient groups disagree about some topics, especially chronic Lyme, testing and how long to treat. Mainstream sites follow the IDSA/CDC view; some advocacy groups and ILADS take a different view. Our IDSA vs ILADS page explains both.
Are Lyme disease websites a substitute for seeing a doctor?
No. Websites can help you prepare and ask better questions, but only a clinician who knows your history can diagnose or treat you. See preparing for your Lyme doctor visit.
How did you choose these sites?
We opened every site in October 2026 and only listed ones that loaded and showed recent activity. We aimed to include both mainstream and patient-advocacy perspectives. Listing is not an endorsement, and we have no financial relationship with any of them.
Can I suggest a Lyme disease website?
Yes. Send it through our contact page. We review suggestions using the checklist on this page.
Sources
This directory is one part of our step-by-step plan. See every step in How to beat Lyme, or browse all Beat Lyme guides.